Health

Support groups for mesothelioma

Support groups for mesothelioma

Support groups provide patients and families with a platform to share their experience with others. There are many options for mesothelioma patients to get the support they need.

 Mesothelioma support groups come in different shapes and sizes. Support groups range from non-profit research foundations to online discussion forums.

 Why participate in a support group?

  • Renewed hope – They help mesothelioma patients communicate with each other and share their experiences with the disease. Most importantly, support groups allow mesothelioma patients to find hope in each other.

  • Reduce stress – The sense of camaraderie that comes from talking to people with mesothelioma can also give you a sense of control and empowerment. This can reduce anxiety, loneliness, and depression.

  • Tips – Support groups are also a place to share knowledge about doctors, cancer centers and effective treatments. Other patients have direct experience of what you are going through.

 Support organizations

 The Mesothelioma Applied Research Foundation

The Mesothelioma Applied Research Foundation is a non-profit organization whose main purpose is to fund research to find a cure for mesothelioma. It also provides support and education to patients and families through a network of physicians, advocates, patients, and families.

 The International Interest Group on Mesothelioma (iMig)

iMig is an international network of scientists, doctors, and researchers working on improving treatment options and treating mesothelioma. The organization encourages patients to participate in clinical trials and advocates for increased funding for treatment research.

 Visit the website ‘ International Interest Group on Mesothelioma.’

 American Cancer Society (ACS)

The American Cancer Society provides support to patients and caregivers who have a diagnosis of cancer. Patients can find support through their online social network, called WhatNext, and the network of cancer survivors. These services connect patients with others and give them the opportunity to share their experiences.

 Visit the website  ‘ American Cancer Society.

 Online support

 Facebook groups of the Meso Foundation

The Meso Foundation runs four Facebook groups for survivors, caregivers, and bereaved. Some pages are private and require an invitation to join.

  • Mesothelioma Survivors and Caregivers (private, by invitation only)

  • Conversations between Mesothelioma Caregivers (private, by invitation only)

  • Mesothelioma Patient Support (private, by invitation only)

  • Mesothelioma Cure (public)

 Connect to Facebook group ‘Meso Foundation support groups.’

 CaringBridge

CaringBridge is a free online service that allows patients to create personalized web pages. Patients can use these pages to keep family and friends up-to-date. It provides tools such as newspapers, a guestbook and a calendar to help patients stay inspired, optimistic and organized. 

Visit the website’ CaringBridge.’

 Cancer Support Community

The cancer support community offers an online support service called Living Room. Patients have access to live discussion groups and discussion forums. They can also create a custom webpage to share updates with family and friends.

 Visit the website’ The cancer support community.

 Daily strength

Daily Strength provides a network of online discussion forums where users can support each other and help other patients cope with various diagnoses.

 Visit the website’ Daily Strength discussion forums.’

 WhatNext (Cancer Support Network)

WhatNext is a social network partner of the American Cancer Society. It helps cancer patients and their caregivers find more information about their diagnosis. Patients can also contact other people who are battling cancer.

 Visit the website’  WhatNext ‘.

 The network of Cancer Survivors (CSN)

An online community for patients and families of cancer patients. It allows patients and their families to connect with others through discussion forums and discussion forums. The CSN also provides patients with a CSN email address for private communication. Patients can also create a personalized page with a blog.

 Visit the website’  cancer survivor network.’

 Helpline

Support groups of the Meso Foundation

The Meso Foundation’s support groups meet by phone every two weeks. Support group topics include spouse loss, caregiver support, and patient support.

 Visit the website to get access to telephone support group schedule.

Cancer Helpline

The Helpline for Cancer Support provides caregivers or patients who have been diagnosed with cancer information and advice

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